Friday, December 11, 2020

A Re-start for the Coming Times

 Weekend Update - 12/11/20


Well here we go. I have not been willing to sit down and write about my current condition ever since I my cancer recurred in February of this year. 

I am more aware than ever of just how much of a process dealing with this disease is. 

First my PSA jumped up almost 5 points right on my 5 year anniversary of my last fight with prostate cancer which cost me the removal of not only my prostate but my bladder (I now have a urostomy), my testicles and 43 lymph nodes. Add to that list radiation proctitis which makes going to the bathroom an adventure almost every time. Also had depression before but after this …….. well damn.

Then it was the waiting and watching as my PSA continued to jump about 5 points every 3-4 weeks as I waited in the necessary tests and scans to confirm the cancer had metastasized to the bones L-4/L-5 with a tumor also located in my spine. 

In the early stages of this latest recurrence I was forced to move too a new abode due to the incompetence of others (that is a story for another time).

I am now in palliative care and am currently on medication which has given me a new appreciation for “hot flashes” and fatigue, etc.. The good news is this has stopped and reversed my PSA level which continues to fall for now. I will be offered radiation only as a pain management treatment. Other medications are also in my future. 

I am very afraid of the progression of my disease and how it will affect my ability to walk and get around. Asking for help has never been one of my strong suits and it still grates my nerves that I have to. 

I am having to ask for more assistance in doing certain things and am having to adjust my exercise/walking routine to deal with effects of the disease and medications.   

So here I am at this most wonderful time of the year watching my country implode as my fellow citizens are dying in mass due to the willful incompetence of those in power. Not to mention the stress of dealing with the damn pandemic which has and does overlay everything.

I also rejoined the prostate cancer support group which has reminded me of the importance of empathy and that people are people. As a friend of mine says……….”People…I just don’t have good things to say about some of them”. 

One of my other realities is looking at my possessions and once again downsizing. Letting go of a lot of things that a year ago I would not even consider letting go of or passing on.

Also having to review all of my end of life documents and being reminded that dying is not a cheap affair. 

I also know that I am not dead yet and that this too will be a process. There is a part of me that is just so damn tired and am wanting to end this crap. However I do plan on riding this train as far as I can. I do have some time left. The end of my ride is up to powers greater than myself. 

On another note…I also wanted to ask folks to not give me anything but cash as I am in the process of letting go of all the stuff I can. {check me in VENMO) And I am asking for any financial assistance available. Life is going on and so are the bills. Being sick is not cheap.  

I am trying to do my best to leave with as much grace as possible as I have been granted with more grace than I feel I deserve in my life.

I would ask who ever reads this to remember something my mother said to me….

“Leave people, places and things at least a little better than you find them”. We are all one.  

Thursday, August 20, 2020

Watch Barak Obama's full DNC speech at the 2020 DNC

 https://www.nbcnews.com/video/watch-barack-obama-s-full-speech-at-the-2020-dnc-90344517573?cid=sm_fb_maddow&fbclid=IwAR0NbjNEtBRaZByNEhTwsl0vqI-nu-Pshj3hopF4SITW_xg7X4F_4XMR-Kc

Tuesday, August 18, 2020

Michelle Obama's full speech at the 2020 DNC

 https://www.nbcnews.com/video/watch-michelle-obama-s-full-speech-at-the-2020-dnc-90227781993?cid=sm_fb_maddow&fbclid=IwAR0evvz5dejSvDg-zpBlE7yiu0QME-n4XVbWuydZIVc2A53MxO5jbMV86oE

Juries: Last Week Tonight with John Oliver (HBO)

Friday, August 7, 2020

Saturday, August 1, 2020

Weekend Update 08/01/2020

    My thanks to all of those who have helped me transition into my new place of residence. Moving is never easy (especially those of the forced unplanned kind) but I did make it through thanks to a lot of help from my friends.     
     On the medical front I am tolerating my cancer treatment pretty well. Just the fatigue, hot flashes, and a little nausea. The cancer itself is eating into my spine and the soft tissue there. The discomfort/pain associated with this is beginning to become an issue. I see doctors on Monday the 10th and my oncologist/labs on the 17th of this month. 
    The one good thing about the move is that it has been a great distraction from all the health issues. My personal thanks to Comcast/Xfinity for continuing to be the first class assholes they continue to be. Also, sorting out what can go where I now am and will have to go to storage is proving to be an ongoing adventure.
    And as I swallow my pride I must also continue to ask for any financial assistance folks can provide. You can go through my VENMO or my PayPal "pool". 

    
https://www.paypal.com/pools/c/8qWYImgy6r?_ga=2.98491871.1534839982.1595092284-595481045.1595092284

Venmo - under Richard Hill

    For those of you asking how I am "FEELING"................well ......... I want so much to be snarky and say "More will be revealed" but I know that this does not serve me well and is not fair and disrespectful to ya'll.
    So on the feelings front......sad, lonely, depressed, angry, frustrated, overwhelmed. When asked "How are you doing? or "You doing OK?" .... There is that voice in my head that says "You really don't want to know" and my forced response to those asking is "I'm OK. One day at a time" because sometimes I really do not want to talk about any of this. So I ask ya'll, only if you want to, to press me and ask me again and to let me know you are ready to listen to how I am really doing. I know I need to talk about this stuff because being alone with it is not a good thing for me. 
    Of course the layer over all of this is the ^*%%(^)* pandemic and watching our fascist in chief dismantle our democracy as 40% of the country cheers him on. Prepare for some really insane crap in the next 90 days. Please please please VOTE BLUE.  

Saturday, July 25, 2020

this should wake people up

Resistance Women by Jennifer Chiaverini....historical fiction about germany from 1930

Saturday, July 18, 2020

Asking for any and all financial help

The cancer is back. It has metastasized to the bone in my spine. I have had to move and will have to move again to a permanent residence. The bills have started. Any assistance is greatly appreciated. You donate tru Venmo or PayPal. 

https://www.paypal.com/pools/c/8qWYImgy6r?_ga=2.98491871.1534839982.1595092284-595481045.1595092284


Venmo - under Richard Hill   

comet


https://www.esquire.com/news-politics/politics/a33347230/portland-oregon-protesters-detained/?fbclid=IwAR33hhSxWeOG15eahd0wx_lICS6BPz_4YyZfN7OtKO6fq5Q923T3t_leSO8

https://www.esquire.com/news-politics/politics/a33347230/portland-oregon-protesters-detained/?fbclid=IwAR33hhSxWeOG15eahd0wx_lICS6BPz_4YyZfN7OtKO6fq5Q923T3t_leSO8

Friday, July 17, 2020

Brian Kemp Is Bungling the Job Into Which He So Vigorously Finagled Himself

https://www.npr.org/sections/coronavirus-live-updates/2020/07/16/892109883/georgia-gov-brian-kemp-sues-atlanta-mayor-keisha-lance-bottoms-over-face-mask-or?utm_term=nprnews&utm_campaign=npr&utm_source=facebook.com&utm_medium=social&fbclid=IwAR2hk1NwxAMbLedCuRkydtpuMQNLzvpZpLqlFfKrOQ7e_TAQjmprOo4AMxg

Tuesday, July 14, 2020

A Big C Update

Just a note to say how my cancer treatment is going. FATIGUE and HOT FLASHES. Ladies I now feel your pain. That is all.

'meriKKKan stupid


information to share


some questions......

Rush to Open Schools in 3 weeks! This can never work.

Betsy DeVos, we have a few questions for you:
• If a teacher tests positive for COVID-19 are they required to quarantine for 2-3 weeks? Is their sick leave covered, paid?
• If that teacher has 5 classes a day with 30 students each, do all 150 of those students need to then stay home and quarantine for 14 days?
• Do all 150 of those students now have to get tested? Who pays for those tests? Are they happening at school? How are the parents being notified? Does everyone in each of those kids' families need to get tested? Who pays for that?
• What if someone who lives in the same house as a teacher tests positive? Does that teacher now need to take 14 days off of work to quarantine? Is that time off covered? Paid?
• Where is the district going to find a substitute teacher who will work in a classroom full of exposed, possibly infected students for substitute pay?
• Substitutes teach in multiple schools. What if they are diagnosed with COVID-19? Do all the kids in each school now have to quarantine and get tested? Who is going to pay for that?
• What if a student in your kid's class tests positive? What if your kid tests positive? Does every other student and teacher they have been around quarantine? Do we all get notified who is infected and when? Or because of HIPAA regulations are parents and teachers just going to get mysterious “may have been in contact” emails all year long?
• What is this stress going to do to our teachers? How does it affect their health and well-being? How does it affect their ability to teach? How does it affect the quality of education they are able to provide? What is it going to do to our kids? What are the long-term effects of consistently being stressed out?
• How will it affect students and faculty when the first teacher in their school dies from this? The first parent of a student who brought it home? The first kid?
• How many more people are going to die, that otherwise would not have if we had stayed home longer?
30% of the teachers in the US are over 50. About 16% of the total deaths in the US are people between the ages of 45-65.
We are choosing to put our teachers in danger.
We're not paying them more.
We aren't spending anywhere near the right amount to protect them. And in turn, we are putting ourselves and our kids in danger.
Please copy, paste and share.

Sunday, July 12, 2020

good stickers

I have a ton of stickers! They are all Buy One Get One Free on my online shop for the next few days!
www.danielcurranart.com

Thursday, July 9, 2020

No, You’re Not Tired of Being “Politically Correct”

https://johnpavlovitz.com/2018/01/25/no-youre-not-tired-politically-correct/?utm_campaign=coschedule&utm_source=facebook_page&utm_medium=John+Pavlovitz&fbclid=IwAR2Jxsr-CcC_eTmRavdYQuqCyawLlgkmeT6m-mv9lzCJIqXkjQyMVZTheqs

'Me And White Supremacy' Helps You Do The Work Of Dismantling Racism

https://www.npr.org/2020/07/06/887646740/me-and-white-supremacy-helps-you-do-the-work-of-dismantling-racism

'I Didn't Want To Be A Hashtag,' Says Black Man Who Feared Being Lynched In Indiana

https://www.npr.org/sections/live-updates-protests-for-racial-justice/2020/07/08/889171637/i-didn-t-want-to-be-a-hashtag-says-black-man-who-feared-being-lynched-in-indiana

news worth reading

https://www.theguardian.com/us

Tuesday, July 7, 2020

Loeffler opposes WNBA's plan to spread 'Black Lives Matter' message

https://www.ajc.com/blog/politics/loeffler-opposes-wnba-plan-spread-black-lives-matter-message/ybTbHIpzZx7dbRlz3sfLiM/

The White Privilege of Ignoring the News

Opting out of the lives of millions of Americans because those lives interrupt our day with unwelcome news, is to declare our patriotism incredibly selective and our love of country largely self-centered.

https://johnpavlovitz.com/…/the-white-privilege-of-ignori…/…

#MondayMorning

Sanders Calls on 'Do-Nothing' Senate to Approve $2,000 Monthly Checks, Cancel Rent, and Expand Medicare

https://www.commondreams.org/news/2020/07/06/sanders-calls-do-nothing-senate-approve-2000-monthly-checks-cancel-rent-and-expand?utm_campaign=shareaholic&utm_medium=referral&utm_source=facebook&fbclid=IwAR3UVIJxFP7799XWas2LDuNp7AeF1MkQ4hZ9Gd7Wb0B4LQ8Dn7OM7n3bZ4c

POOR DEPLORABLE TROLL - A Randy Rainbow Song Parody

White Supremacist Ideas Have Historical Roots In U.S. Christianity

https://www.npr.org/2020/07/01/883115867/white-supremacist-ideas-have-historical-roots-in-u-s-christianity